Open DIPG (Diffuse Intrinsic Pontine Glioma) Research Project
This research project is all about collaboration, and is the first of its kind in many ways. “Open DIPG (diffuse intrinsic pontine glioma)” is the first translational, multi-institutional study that will address an unmet need for treating pediatric Central Nervous System (CNS) tumors.
The overall objective is to utilize the strength of the many institutions involved in the two consortia involved, the Pacific Pediatric Neuro-Oncology Consortium (PNOC) and the Children’s Brain Tumor Tissue Consortium (CBTTC) to accelerate discovery, innovation, and effective treatment of the most challenging childhood cancers using a multi-pronged approach. This is the largest research project ever done on this type of tumor, DIPG and will serve as a model for research on all pediatric cancers and beyond in the future.
To fully empower the discovery and therapeutic landscape for DIPGs/HGGs, collaborative networks of researchers and clinicians are required to represent the diverse set of expertise and approaches needed for meaningful and rapid progress. Supporting such collaborative teams across institutions requires a differential funding model than traditional National Institute of Health (NIH)-funded studies that only foundation-based approaches are likely able to support.
Foundations like ours are bridging the gap left by the NIH’s minuscule 4% of their annual research budget that is allotted to all pediatric cancer research.
Together we are funding these important research efforts that our children so desperately need to give them a fighting chance.