The Swifty Foundation was founded by Michael Gustafson before his death at age 15 to give his short life meaning. Since his dream of becoming a scientist wasn’t possible, he wanted to help scientists help other children beat this devastating disease. Focused on eradicating pediatric brain cancer, Swifty has three highly focused initiatives:
- Increasing research opportunities through Tissue Donation Programs such as the Post Mortem Tissue Donation program Swifty started to get diseased tissue to researchers and the first of its kind Tissue Navigator position Swifty initiated at Lurie Children’s Hospital. The Tissue Navigator will facilitate this much-needed tissue collection.
- Accelerating research by promoting collaboration amongst foundations, medical institutions, researchers and funders.
Funding medulloblastoma research directly and in collaboration with other organizations.
100% of each donation go towards pediatric brain cancer research. The family personally covers all administrative costs for the foundation.
Dragon Master Foundation was started because of one young man’s desire to help other people with cancer. David Pearson was passionate about helping researchers and moving science forward, and after his death from Glioblastoma Multiforme, his mom and step-father set out to try and spare other families from the pain of losing a child to cancer.
Dragon Master Foundation’s purpose is to develop and implement tools and technology to empower brain cancer researchers to collaborate more effectively, and further, to encourage that collaboration to find a path to the cure. Though not always popular concepts, open data and big data are both important factors that the foundation has championed in the world of academia and research.
The foundation’s President, Amanda Haddock, has been recognized for these efforts as a White House Champion of Change for Precision Medicine and has been invited to participate in Cancer Moonshot efforts. Dragon Master Foundation’s focus for 2018 is to help launch the first ever pediatric brain cancer trial where the tumor data will be sequenced and shared in virtual real-time and further, that data used to impact each individual child’s care.
As the world’s largest nonprofit dedicated to children with brain tumors, the Pediatric Brain Tumor Foundation’s mission is to care for families along their entire journey, cure every childhood brain tumor, and help survivors and families thrive. Since 1991, the PBTF has funded more than $30 million in research to increase survivorship, improve quality of life and ultimately eliminate pediatric brain tumors.
We also equip, educate and empower families through emergency financial assistance, peer support, college and vocational scholarships, and other free services. Our national events include Ride for Kids, Starry Night and Vs. Cancer fundraisers, and chapters in Georgia, Illinois and California provide on-the-ground support to families in these regions. Call 800-253-6530 or visit curethekids.org/mission to join us in our mission to Care. Cure. Thrive.
Kortney Rose Gillette was a vivacious nine-year old girl with a winning smile and unparalleled zest for life. She loved playing with friends and animals (stuffed or real) and enjoyed school at Wolf Hill Elementary School in Oceanport, NJ. This didn’t change even after her diagnosis of a terminal brainstem glioma (Diffuse Intrinsic Pontine Glioma -DIPG). On April 27, 2006, four months after her diagnosis, Kortney lost her brave battle with this pediatric brain cancer.
Established in Oceanport, NJ in 2006, the Kortney Rose Foundation is a 501 (c)(3) charity with the mission of funding research to promote better treatments and cures for brain tumors, the #1 disease killer of children. With a battle cry of “Help Get Brain Tumors Off Kids’ Minds,” the foundation is responsible for nearly $2 million donated to pediatric brain/central nervous system tumor research. KRF prioritizes collaborative research, and was an original research partner that helped to establish the Children’s Brain Tumor and Tissue Consortium (CBTTC).